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Thursday, June 12, 2014

Story of a lifetime

Today I went in for my annual Physiatry appointment.  I see my physiatrist, and neurologist annually at this point.  It's a question and answer session basically?  How's your mood?  Are you experiencing difficulty focusing?  Any changes since last year?

Without fail, I have always been against the use of a neuro stimulant.  Throughout my progression, and rehabilitation, I've been fortunate to gain a perspective of watching myself grow, relearn, and adapt to my surroundings as if I'm growing up again.  Somedays it's an infuriating perspective, as I'm nearly 30, and I'm relearning social norms, traing myself to walk, run, react in a timely fashion, and speak clearly.  Of course there are days I don't even want to face the world, yet I get up, and go out, and often meet amazing people on those days.  It's been a difficult spring, as I'm more aware of who I am now, yet I still don't have a handle on what to do with the rest of my life.  It's like when I graduated from college, and didn't have any idea what to do next.  Things fell into place for me, just in time to acquire the most unique,brain injury out there.  I mean really, who takes Yaz (a contraceptive), and expects their heart to stop?  Certainly, not me, or anyone else out there.  I recently learned I am not the only woman to suffer a sudden cardiac arrest as a result of this drug.  Sadly, it seems I might be the only survivor, though.  Apparantly, there is little to no research regarding cell death from lack of Oxygen (Anoxia).  That caused my brain damage.  Frankly, I'd prefer to be single parent, over the single survivor of severe cerebral anoxia.  The hardest part of this injury for me, is it's inconsistency.  The random tremors that toss me on the ground, without warning, the way my visual accuracy can differ with each day, how much my vocal clarity can differ from one moment to the next.  

With most other injuries, if you break, or tear something, your body can attempt to heal itself, in time.  That's my perspective on this injury too.  It took me 3 years to sell my car, because I believed my vision would recover. (I was initially blind from this injury).  Clearly, much of my vision has pieced back in, and for that, I am so thankful, however, I don't see myself safely behind the wheel of a car anytime soon, because I cannot react to anything, in time, to save myself.  I fall too often to keep track of.  My approach is, if no one saw, it didn't happen.  Although, my consistent bruses, and road rash indicate otherwise.  Physically, I can say that I have a definitive faith in my ability to improve.  I would rather afford myself the opportunity to push, and test my abilities, and likely get hurt in that process, than sit, and wallow in a pit of despair.  We all have good days, and bad days.  It just so happens that ny bad days are profoundly more so, because I can't trust my body to do what I ask it, in a timely, or effective manner.  My mental hang-ups increase ten-fold, as I've learned from experience, that I cannot trust myself.  Although, through all of the pain, tears, and frustration, I have seen myself improve.  I've learned to walk, and run again, without help (sometimes).  It may not be consistent, but it keeps me going.  Life is about testing yourself, accomplishing new things, and taking pride in where you're at, and how far you've come, even if there's still a long road ahead, we have to appreciate the journey.


Julie/Mom said...

Very well written. Your determination is why you've come as far as you have and it's what will keep you going and always improving. You've got the right stuff kid!!
Love you the most.

Marti said...

Court - you are an old soul - very wise for someone so young.

I think your purpose in life is to somehow
help other people with disabilities as well as people without any.

We've all learned so much from your wisdom and the way you've chosen to live your life (with a big highlight on the word "chosen").

Love You!

Sandy Mc said...

Courtney, I am honored to have met you. I look forward to getting to know you better this summer. Your courage is immeasurable! I think that you have already wrote your book from what I read in this blog. The seminar will just put the finishing touches on it, and hopefully connect you with the publishing world. There are countless people out there whose lives will be changed by your story.

Sandy Mc said...

PS I mean already "written" your book. I should proof read!

Unknown said...
This comment has been removed by the author.
Unknown said...

Tracking you through the years since your incident, we've been blown away constantly by your courage and persistence in the face of an adversity that would fell most people permanently. You are a role model and an inspiration to all of us to keep trying, no matter what we think may stand in our way. Judy and Jon Bogdanove