Pageviews last month

Thursday, September 27, 2012

Twister!

Crikey! I'm at a loss for how to spill my thoughts tonight. I'm at a desperate crux in my life in regards to my housing situation. Im supported by government funding (section 8) for my living accommodations, while I'm doing rehab. Thank you VT! While it's an incredibly helpful asset on the one hand, it's also a subject I rarely write about, as I'm unable to keep a positive outlook in this area of my life. Am I proud of the fact I need your tax dollars to support myself (hell no!). But do I need help getting back on my feet, yes, yes I do.

So, here I am, in my apartment, going through roommates/ live-in aids like toilet paper. I had to let my current one go, last night. I really did not want to have to broach the subject yesterday, out of respect for her birthday. Though, that's the way the cookie crumbed. ;)

We've had our ups and downs over the past month, but I've been so desperate to not be in trouble with the housing authority, I've blatantly overlooked many of the red flags in her personality. Neediness, consistent excuse maker in every situation, financially un-stable... We all have our own weird hang ups, but, literally, each day I've engaged in conversation, I've learned 3 or 4 new ones she has. I hired her to help me with basic house-keeping tasks that are very time consuming for me, as well, as to have someone I could depend on for transportation. I feel stupid for not making this definitive realization 3 weeks ago, when she was unable to help me get somewhere, because of lack of gas money. My brain injury team has to tell me, I'm being taken advantage of, or at least my resources are. It's like I need things to be spelled out for me, and to be pissed off in the moment to take action. I didn't want to have that conversation on her birthday, but sometimes you only have one opportunity with back-up, and you have to seize it. She was 45 minutes late to the meeting she set the time for, and spent half of the meeting whining because I have a support team to gang up on her. That's valid, but I have their help to support me in situations like this, because I have difficulty laying down the law. Yet, somehow it's just easier to do when you know someone is bull-shitting you. We listened to an hours worth of excuses, judgements, defensive reasoning for why she wasn't fulfilling her expectations in this position. It can't be easy, but I never said it would be. I try to keep an open mind with each new person I bring in, but she made it difficult from day one. It's as if she isn't able to make certain connections, that would enable her to sustain herself. I feel badly, but I can't be the person to enable her. She left left last night in a fit of hysterics, for dinner with friends. At least she had others to help her deal with her difficulties, and it was the worst timing possible, but it had too be done. I feel callous and cold looking at the situation that way, but I need to put myself first in these situations, so even though I'm dragging my feet, I'm finally starting to round that corner.

You thought tis ridiculous tale was over, but the saga continues.., Last night, around 1030, I got her text that she wasn't coming home. I thought that was probably a good thing for her to have a little space. I locked the doors, and went to sleep. Around 130 I awoke to the deadbolt on the door, being repeatedly hit. No calling, no voice at all. I wasn't getting up to find out who wanted in. I went back to sleep, and found 2 text messages from her. One, "Are you awake?, and 2. My plans changed when I got molested. Hopes you left the door unlocked." We had the door conversation last week, and I told her I dead bolt the door, if she says she's not coming back. As far as the molestation comment, it's unfortunate, if true, but I can't continue to feel responsible for her lack of judgement. I've learned that in this case I was too nieve, in my quest for a kind, helpful, and stable I've-in aide. Another one bites the dust, and I'm hunting again.

Wednesday, September 26, 2012

Trickle-down effect

Today was an incredibly positive day. I suggested I meet my case manager at a local coffee shop at 9, and was extremely pleased with myself for having successfully gotten out the door, under my own power, before 9. Hey, it's the small success that accumulate to create bigger ones so, I feel better about my day, if I'm out the door before 9. Or at least productive in some way. I feel as though I'm in a rock and a hard place with my current living situation. Needing to hire roommates, as caregivers, plainly, sucks. At times I've been fortunate to hire old friends or acquaintances, but in the last year it's been impossible to find available, dependable, trustworthy, and mentally stable help. I just hired a woman, whose a bit older than I am, but seemed quite genuine, though a tad over talkative for my Taste. I've realized there are are no boundaries in that sense.well, maybe finances, but that's all I've encountered so far. I'm really at a crux right now, as I'm not happy in my living environment, but (a don't want to be made to feel like I'm responsible for her current life difficulties,, and b) have no interest in learning to adapt to incessant chatter. We've already had multiple financial disagreements, as well as cleaning related ones. On one hand I'm pleased to see myself standing up for how I want things done, but, it almost pains me, especially with her. There are excuses in every conversation, regardless if they're confrontational or not. Never met anyone with such an innate ability to not take responsibility for themselves or their actions. Still, a very nice girl, but I'm finally in a place in my life where nice no longer makes the deal . I learn more about myself, and my abilities to look after myself, from every roommate, whether it be a positive or negative experience. Therefore, I suppose I could look at it as all positive, because I'm learning how to manage my time , and space, while attempting to be respectful of theirs. Though, I will say, it can be difficult to take some statements seriously. I just don't know where to draw the line.

I am also spending way too much time arguing with various agencies and doctors, in a apparently fruitless labors to obtain speech therapy. I even got turned away from a theatrical singing company, that was recommended, as a method to learn breath support. Although, they were receptive to my rebuttals for being turned away. Which is more than I can say for anyone else presently.

It was a great running day, fall is the best! The air is cool and crisp, and the fall colors, are unbelievable. I know that my visual processing is getting better, because this is the first fall I've really been able to spectate with such amazement, in oh, 5 years. Pretty incredible, if you ask me.

Tonight, I had a meet-up with a couple, both old college friends. We've been trying to get together for the last month or so, and I was so happy we finally made it happen! I knew Nathaniel from the dorms and Amanda from Alternative Spring Break. It's just so amazing to see people who understand, and have an innate sense of how they want their lives to go, and are well on that path. So cool, at least thats how I see it, since I used be in that world. Ironically, as we're talking about how it seems there are so many fewer people we know, or recognize, since the end of college, who should walk by, but Megan, most recently, one of my past roommates , but in college Amanda and I both knew her as the director of ASB. We all had a fun mini reunion. One of the occasions I appreciate living in my old college town. It's just so beautiful to be reminded that I do still have friends who know , and understand the concept of a work ethic, as well as a view of who I once was. That statement isn't meant as a criticism of anyone, just more as a a statement about my day to day life, where nothing, period, is expected of me to accomplish anything. This is terrible, I had a great day, yet I'm still so cynical about my life on government funds. To be blunt, it often feels like a dead-end road to hell. Just when I think we're progressing in some regard, I run into another. 'magical' set-back. I'm so thankful for all of the amazing, positive people I have in my life. In life , other people can make, or break you. I feel so fortunate to have so many 'makers' on my side, as I've made so much progress, with the help, and assistance of so many amazing believers. Perfect is an ideal that can't exist, since we all have a different. Idea of what it entails. Maybe someday I'll get a better sense for who to allow to help me, more like, one day I hope to have a better choice. Can I run away screaming, yet? I'm learning that the ideas behind government assistance, is quite commendable, yet the implementation not so. These programs are designed like factories, with the idea to perpetuate or sustain life, by it's own standards. Yet, there is no accommodation for the fact that all people are different in many ways. Of course it's not economically viable to run a factory which accommodates for differences. Though, wouldn't you think it'd be easier to live in a society where people could have access to the same goods and services. Obviously utopia doesn't exist anywhere, and we're all trying to put our best foot forward. I think I'm just saying that we, as Americans, need to live up to our national creeds, of 'United for one, United for all. These programs are so complex now, with many caveats, and ways to work the system. The key, in my opinion is to simplify.

Friday, September 21, 2012

Freaky Friday

It's been an interesting week, trying to get acclimated to a new roommate/care provider. I hate writing that, but I have funding to provide rent in exchange for the help I need getting places, and general support. I've learned that I am terrible with laying down the law for these people, and often receive nothing, other than a bad taste for these people. In theory , this should be a real asset for an individual with a disability, though, in practice it's often a way to have my resources taken advantage of. Somewhere, there is a line between petty disagreement, and laying down the law. I have a really hard time laying down the law, as I don't like having it done to me, and prefer to naïvely assume that others are equipped with the necessary abilities, boundaries, and self-control to handle occasionally assisting me with transportation, and the occasional mobility deficit, or processing issue I may encounter. What is interesting to me about dealing with this situation, is that I realize this is the first time since my injury that I've had the foresight or introspection to realize I'm letting my assets be taken advantage of. It's also the first time I've been able to immediately explain my difficulties with someone. I'm re-learning who I am, and I need for whoever I bring in to be a good role model. However, I've yet to find one in the last year, apparently. I'm not happy in my living situation, but really, who wants to have to hire a roommate?

In other news, the woman who assists me with my vocational interests, has also decided to help me work with a barn to do some horse-back riding again. Hopefully, I'll be the subject of a 17 year old girls internship in hippo therapy. I met her last Tuesday, she seemed nice, though a little on edge. What really struck me though, was her appearance. I've become pretty accustomed to having to tell people I'm in my late 20's, and getting the response, "Gosh, I thought you were about 16. I cringe every time I hear that. It seems that's what I get for choosing to not wear make-up. I don't usually like the way I look with it on, plus I've always been a crier. That does not mix well with mascara. However, meeting this girl, I suddenly realized that is part of why I look so young to people. I realized. Oh well, at least now I realize why people think I look so young. That aside, I felt so at home in the barn, meeting mama and foal, as well as assorted boarders, and lesson horses. If her internship paperwork goes through, I can hopefully start next week. Keep my fingers crossed.

This morning, I had a meeting with my supervisor at the transportation agency where I have a part time job. It's been a rough start, as everyone had different ideas about how to accommodate my needs. I'm so impressed with this mans willingness to listen to my thoughts, regarding the position itself, what I observe, as well as the fact that I think I allowed my brain injury team to be to over zealous in regards to accommodations. We decided on a way for me to submit my paperwork more efficiently, rather than me struggling to do everything on the iPad. It's an awesome tool, but it's not a magical tool that makes everything effortless, which is how I feel my brain injury team approaches it. Actually, a lot of brain injury in general. Brain-injury is an umbrella term for any disorder in the brain these days, from concussions, strokes, or blunt force trauma to the head. It seems too complex for people with (me) and without brain injuries. Though, that's the way it is, so we pick out what we think is best, and move forward from there.

After my morning meeting, which I jogged to, I carried on, and ventured down toward the bike-path with a killer hill work-out. Was far too overdressed Fo this 70 degree day, but what are you supposed to do when it's. 50 degrees, as you head out the door?
It's been somewhat challenging to come back from an amazing adaptive adventure, to the day to day drudgery, but at least I'm getting to a point where I feel like everyday is a step in the right direction, even if, it's a difficult day!

Tuesday, September 18, 2012

Colorado- the magic of the mountains (and horses!)

Return to Crested Butte

Words really do no justice for the genuine kindness, empathy, and understanding of the people I meet here. Everyone is so patient and practically hushes me each time I automatically apoligize for being such a sloth. The momentum, as well as the pace of life is so much more empathetic, and genuine. I was a slow mover before my injury, now I move lethargically, and have become accustomed to consistent guilt for slowing everything down. Guilt is relative though, as it obviously doesn't stop me from going after what I wish to do.

I arrived in Denver, politely refused a wheel chair, and was shocked I wasn't forced into one. Instead, staff patently walked me out of the gate, then and to baggage claim. Such a novel idea, not to force help I don't want or need onto me or anyone. I met my friend, Maggie, and another staff person from the ASC at baggage claim. The only down side of flying into Denver is its distance from Crested Butte, 4.5 hours. At least I had good company. We took some back roads, called Cottonwood pass on gravel roads through the mountains. We the van ride involved listened to an NPR game how, called, 'Wait, wait, don't tell me!'. Hilarious.

When we finally pulled into the Butte, it was around 730, and we threw my bags into Maggie's apartment, and walked to a local watering hole, The Brick. I'd been told one or two people might meet us for a mini birthday celebration. I walked in to find all of the adaptive staff members, as well as a handful of locals I'd met on my last trip. Unbelievable!

I sat down, slightly overwhelmed, but so touched, that all of these people had shown up. Before I could even order my pizza, I was presented withe most ornate, candy coated cake, which was pinterest inspired. The top was all Reese's pieces, and the edge of the cake was sided with kit-kat bars. Unreal! It was so touching to see nearly everyone who I'd met on the previous trip! I was, and still am so grateful to have had the opportunity to see so many of the amazing people I'd met last winter. The only downside was that I was so worn out from lack of sleep and travel, I had no energy to be a party animal. By the time got back to Maggie's, I instantly collapsed, and slept soundly for the next few hours, although, I was up again at 4:30, probably from he time change. I had plenty of time to putter round at my usual morning pace, of deathly slow. After breakfast 9am, rolled around, and we trucked out the door. I'm very unaccustomed to being in an environment where people don't automatically take over for me. I love this about the adaptive program here. I'm somewhat certain I developed a reputation as that sort of person, on my last trip. That is what I want, but I feel like an ass, because I suddenly realize how I expect anyone to be okay with giving me a hand over an obstacle, helping me zip my coat, or whatever. It's funny how you take certain things for granted in your home environment, but you need to walk those who are new to dealing with you through how you take on different tasks. It always seems awkward explaining myself to new people, but I'm slowly getting better at it. People are generally very helpful, everywhere, but sometimes I find myself in a situations, where I just asked a complete stranger for a hand. People rarely say no, but one person once said, yeah, why? At that point I sheepishly admitted they weren't the person I thought hey were, and that I had balance issues from a brain injury. Thinking about how my words may sound is often beyond me. Always something to work on, for me, and others too.

After stocking up on food supplies, we arrived at the Ranch. Pulling up, it seemed, exactly what I'd pictured. Unbelievable homestead, built into the rocky mountainside, with post and beam construction. Gorgeous. The barn and round-pen were on the left, below the house. I was also struck by the green fields, which it took me a couple days to realize that, the grass, was basically an irrigated crop, so they could get hay from their own land. There isn't much greenery, so to see these expansive fields, along a rocky mountain-scape, was extremely striking. The horses were all in the field/ rocky area by the barn, and river. Looks quite idyllic, as they're so fortunate to have access to so many natural resources. Maggie, Will, the adaptive staff member on my trip, and I, stepped into the Ranch, and werre immediacy welcomed by a very excited black-lab, Cora. Apparently, if you enter through the front, you step into a small foyer, with space to take off your outerwear, but, the only way to the rest of the house is up a spiral stair-case. I used to love a good spiral stair-case, but now there's something about it being open on both sides, that really freaks me out, and I become shaky, and unsure of my mobility. After a precarious ascent, we leaned we could walk around, and into the house on the main level, which made things much easier. Mike and Jan, were the ranch owners. I was relatively surprised when Jan appeared to greet us, in a wheel-chair. Apparently, she'd torn ligaments in her knee. The living arrangements struck me, as relatively inaccessible, given the spiral stair case, but she had no problem. We all ate lunch, and waited for Mike to return. Once he did, we got the basic details of my deficits , and injury, as well as some goals I had, out of the way. We headed out to the barn, and Mike selected a horse he thought would be a good match. I was immediately unimpressed, as the horse appeared relatively old, and made a reference, declaring my lack of enthusiasm. As soon as I said that, I immediately regretted it, because a horse is a horse, and I hadn't intended to sound ungrateful for the opportunity to ride. As soon as I was in the saddle, that horse no longer was the lifeless Eore, I'd pre-judged it to be. She came alive, and safely tested me. I have the worst reaction to fear, I freeze, and stiffen up. When you're on a horse, the key to staying balanced is to move with them. Therefore, when a horse moves unexpectedly, I freeze, and end up on the horses neck until I can collect myself. That day, we spent the afternoon trying to get me to loosen up, and not cling on for dear life. As a former rider, I chide myself for reacting in this way, as it's poor riding etiquette, but, I know understand it's a fear reaction, that is pretty hard to overcome. Awesome. It's not a fun day, when you realize you're now afraid of favorite animal. Horses were my life growing up, now, obviously, I'm viewed as a liability around them, which makes it relatively difficult to be around them. As does the expense. Yet, where there's a will, there's a way. That is exactly why I feel so fortunate to have had this amazing opportunity to come out to Colorado, and not only experience the ranch, but also have assistance conquering my inhibitions.

The next morning I ambled down to the barn to find a horse tied up and waiting. I was pleased to see that he still needed grooming, and tack, as I'd stated I wanted to have a hand with that. I clumsily scraped most of the mud away from the saddle and cinch areas, and managed to get the saddle pad on, although, the saddle was a different story. If I recall correctly, that horses name was Franky, and he was a bit tall for me to feel stable lifting the saddle over my head, or maybe I did try, but fell backwards in the process, and then let someone else do it. That is one of the things I really respect about this crew of folks, they're willing to let me try, even if odds are clearly not in my favor. When you have a disability, its natural for others to feel over protective. I imagine its like how youd want to protect your kid from hurting themselves. But this is life, and sometimes the only way to learn or re-learn is to push the envelope and test your limits. I've learned over the years, that my limits are somewhat malleable, meaning they change. And knowing that, is exactly what motivates me to work hard to regain my previous skills. I always seem to find myself between a rock and a hard place, starting adaptive programs, because I'm not coming into them, as someone with zero experience in the sport, I just have limited adaptive experience, so I start to get edgy when I have basics explained to me, or I'm asked questions, like 'why is it important to make sure the area where the cinch goes, is free of mud?'. I could've answered that when I was 6, and it's hard for me to remember that I need to not feel patronized by basic questions, because I met these people yesterday, not when I was 6. I'm also in the back, because it's so difficult for people to understand me. Although, I'm starting to notice a correlation between age and intelligibility. People in my age group often have much less difficulty. Though, no matter how you look at it, my ability to make myself heard, stinks.

Back to the horses, day 2 began in the round pen again, but after lunch, I got to ride over to the big arena, across the way. I feel Ike my ambitions were bigger than my abilities, which is the crappy lesson I relearn, any time I decide to try one of my old passions. I wish it was easier for me to convey to adaptive programs, the depth of my experience as an able bodied person. Yes, I have a disability now, but I will freak out if I feel like I'm being patronized . Thankfully, this wasn't a huge issue on this trip, though there were moments I bit my tongue (literally).

In the arena I was introduced to pole bending, and the maneuvering behind barrel racing, which was pretty fun. Because I grew up eventing, I know that that style of horsemanship often harshly judges western style riding. The key is to keep an open mind, because it's just as challenging to maneuver a horse in between a line of poles, or round themselves around barrel patterns. It still requires the ability to steer the horse with leg movements. I also really liked using a bosal nose-band instead of a bit. The horse responds to cues by the pressure exerted on each side of its nose. I never knew how they worked, but the horse responds just as effectively. I also felt like it was a more humane choice for me, as I don't always realize how much pressure I'm exerting with my hands. I'm slowly getting better with that, but it will still likely take many more years.
That night I was pretty pleased with my day in the saddle, but relatively exhausted. I wasn't surprised when Mike announced he was off to do some roping, but I was curious where his energy came from. I was wiped from pushing myself to move in different ways, but also from the sun. I was pretty excited by plans of dinner and a shower. After dinner, I headed to the shower, and began to hear a lot of negative mumbles, but couldn't figure out what had happened until there was a knock announcing that there had been a fall, and Jan and Maggie were leaving for the hospital. When I went out into the living room, I learned that Mike had broken his collar-bone, and that was all they knew. Nothing to do but sit and wait, so we started a wester movie. Not long into it, everyone else returned, including a very sore Mike. It was good to see him, but I just felt so badly. It's hard to watch others in pain, but know its beyond your power to ease it. By the time I went to bed, I had an uneasy stomachs. Which seemed odd since we'd been eating so well. I laid in bed hoping it would go away, but all of a sudden was overwhelmed by a need to be sick. Maggie, an EMT, jumped into action questioning me about everything I'd eaten, gave me a bucket, and oddly disappeared. She returned a while later, and I realized I wasn't the only one to be ill. Pretty sure we were both up most of the night sick, with poor Will running back and forth checking on us. We still have no idea what caused it. By the time morning rolled around I felt like my normal cantankerous morning self, but had no interest in food. I thought for sure, I'd end up sleeping the morning away, after the rough night. Nope. I was even up early enough to wish Mike well, as he left to get put back together. Ella, Mikes daughter, and Maggie and Wills coworker at ASC came to help with me in the saddle, so I wouldn't miss a day in saddle, which I really appreciated. Although, my strength and energy were pretty low from the illness of the night. I was so happy to be back in the saddle, but pretty bummed I didn't have my normal enthusiasm.
After a short day in the saddle, it was time to pack up, and head back to CB. Mike and Jan. returned as we were gathering up our stuff. Good as new, well in a few months, but it can always be worse. I feel pretty qualified to make that statement.

I felt like I'd just gotten there, and it was already time to go. That night, it was awesome to have time to walk around town, do some shopping, and have dinner. Crested Butte is such an overwhelming place, in terms of the generosity and kindness you interact with everyday. It's a really interesting mix of townies, and absurdly rich people who intermittently travel there for solace. While perusing the shops we ran into an acquaintance of Maggie's, who remembered me visiting for ladies camp. I immediately realized why we were suddenly a part of 3 when he bought our dinner, and offered to sponsor my next flight out there. Incredible! I felt like I'd just won the lottery. That kind of generosity is unprecedented in my book, but I'm so grateful, due to my lack of funding for these amazing adaptive adventures. I'm just so grateful there are people who think nothing of sharing their resources. Another reason why it's so beautiful there. Its not easy to get there, but that means that the people who are there, come because they also see it's beauty.

Many thanks to everyone who helped make this trip possible for me, it really helped me begin to realize there is light at the end of the tunnel. Not sure why exactly, but I no longer feel feel like I'm on a dead end road of rehab. Guess that means I now have to figure out what's next!

5 year Anniversary!

5 years ago today, my heart stopped. The chances of any 23 year olds heart stopping, are slim to none, which is one of the main reasons I feel so fortunate to be here. Another being that, the chances of actually surviving an anoxic brain injury is unheard of. That's right, you've never heard of an anoxic brain injury for a reason. Because there are very few survivors of them. Period. I wasn't really aware of this for a long time, but here I am 5 years later, still refusing to accept the perceptions that are put on me simply because I have a brain injury. I like going to support groups and conferences,having to do with brain injury, but I rarely, to never feel like I'm able to benefit, in regards to being comforted that I'm not alone in my struggles. I mean, in specific regard to the assortment of disabilities, I know struggle with. I often wonder how anyone does. We all have such widely varying, and complex issues. One thing I do appreciate is hearing other people's stories about what happened to another, and the struggles and complications they've been through. Brain injury is pretty interesting because it's an umbrella term. For so many incidents, from strokes to concussions, as well as blunt force trauma, and having brain cells die because of lack of Oxygen. Pretty amazing, what the medical community, in general is capable of.
I have my brain injury, because a doctor gave me no other options for a contraceptive pill. I was taking Yaz, a pill that was commonly marketed, and well known in my gender, and age group. I say that because I commonly find myself explaining what it is to anyone not my age group, or whose male. Always makes for weird conversations with strangers. Awesome!
That said, I definitely have my amazing family, and friends, as well as my exboyfriend, Sean to thank for my survival.l. There is some saying about how it takes a big group of people, to accomplish things, and my group has surely changed over the years, but we're still just as strong! A gigantic thank you to everyone whose helped out in any way, in the last 5 years, it's because of you, I'm able to get up in the morning, and take on whatever the world has in store for me each day!

Tuesday, September 11, 2012

The big 2-8!

We've officially survived 5 years of my brain injury experience, as of today. That said, I'd like to thank each one of you, for your support. I wouldn't be where I am today without the support I receive. On this night in September, 5 years ago, my heart ceased, for seemingly no reason. Truth is, the contraceptive, Yaz is what caused my heart to stop. Have to say I feel pretty stupid now for not having had more concerns about the plethora of contraindications on the box. Let me tell you, a 7 month hospital stay and 5+ years if brain injury rehab. is not a favorable way to learn this lesson. My birthday is something I look forward to each year, yet, because I know share that day , with the event that stopped me dead in my tracks, it can be bittersweet. Though, all that said,that event has really shown me why you should take the time in life to enjoy every moment. The more connections my brain reforms, the more I feel like, who I remember myself as, although much less nieve. That said, I would, however like to focus on my birthday celebrations today. My first Vermont friend from way back in the day of college orientation, Ann, picked me up at 8 for a celebratory breakfast. Ann has been the most loyal, and consistent person in my life, here in Vermont.Ann even worked as one of my life skill aides, back in the early days. And, somehow, she is still here, and still keeping in touch. I must say, I had my ideal birthday breakfast of crepes, oozing with nutella, bananas and strawberries. Ironically, this feasts rant is called the Skinny Pancake... I am so thankful to the friends who are willing to eat out with me, because, it's fun, and much tastier than anything I ever cook. This was such a treat, because I so rarely see her, between her 60 hr work week, and assorted extracurricular activities. I pent a good portion of my time at the table wiping nutella of my face. So classy. No sooner did I get home , to receive a call for lunch. My choice again, I chose American flatbread, and enjoyed my favorite flat bread, with Kathy, who took me into her home, and helped me round the clock, back when I needed help, or a vigilant eye with everything from dressing to eating. Another person I'm shocked has kept in touch so closely. I've known her for 4 years now. Today, felt like the first time I'd ever spent time having a meal, with just her, and her relatively undivided attention. Seems crazy, but true. Lunch was short, but sweet , before I got whisked off into her next obligation. I got back around 4, overwhelmed by a need to finish packing, and go for a run. While I was packing, I heard a knock on the door, and was psyched to see another old college friend, as well as previous roommate. She is always on the move, so I felt honored she fit in time to pop by. She bright me card and gift, but I was just happy to have a moment to catch up slightly. After I finished packing, I went for a jog in the evening light, or lack of. It was such a beautiful day, talked to, and saw most of my favorite people. Thank you to everyone who showed, their love, friendship and support!

September Sunday

The crisp fall air is just arriving, and I love it. I love curling up in my down comforter at night, and needing to peel it back immediately, because it's about 65 degrees, and I overheat. And waking up curled into a down mass, feeling suffocated, as even my face is covered, because it's a crisp 55 degrees in my room, as I left my window open.

I immediately pulled my jeans on, and hunted for a long sleeved shirt. However, hunger pangs settled in, and I became distracted. Sunday is my towns day for the local farmers market. I love this event, because of all the people I meet who seem do honest , and content with who they are, and where they are in their lives. It's a very wholesome environment, which I always appreciate. I also like that it's so easy to meet new people, or run into people you haven't seen in years. You just never know.

I have a new roommate now, who seemed genuinely excited to partake in the market with me. It was fun/entertaining for me to see someone else get so excited over handicraft trinkets. The new artisan bread-baker knocks me off my feet every time I see him, and I always manage to do something foolish, like lose my balance, or unknowingly, have food on my face(which, sadly isn't all that uncommon for me). We also stopped by the Chaga tent. A friend of mine markets Chaga mushrooms at many local markets, as well as in natural food stores. It's great to see familiar faces when I go now. It helps me to not be so cynical about the things and people I don't like in this town. That is always a good thing!

As input away my purchases back in my kitchen, the phone rang. I was surprised and pleased to hear from a friend I never see outside of her family gatherings. She was looking for a pal to for a walk, on this beautiful, early fall day. I'm almost always up for a stroll, but often go alone, because I don't deal with anxiety or impatience ally that gracefully, which is often that i feel i illicit these emotions for others. I walk slowly, and I have record of falling. People seem to take it upon themselves to feel guilty if I fall. I hate this. If I fall, it's usually my own fault, and if you knock me over, it won't break me. Those are some of the reasons why I don't choose to invite guests on my walks

Wednesday, September 5, 2012

Denied

Last month I was thrilled to have an opportunity to be interviewed for the possibility of an internship under the revered name of Bernie Sanders. Going in to the interview, I felt off-base, and extremely nervous. I couldn't find the correct unmarked door, making me late, which is a terrible first impression. I finally had to call and ask, which is beyond embarrassing in my book. It was also about 80 degrees that morning, which I had not anticipated, and arrived soaked in my own sweat. Obviously, first-impressions ate my forte. Although, I really did not feel confident in my appearance.

I have to admit, I now feel like a fool waiting for someone to hand me a bone. That is certainly not the impression I wish to give off, but for where I am in my life today, it's incomparable to my pre- injury life. I literally had zero idea about the complexities in American government, and how many people work under the auspice of one great name, and leader. I assumed I'd be an unlikely candidate, given my lack of professional, and academic qualifications, although, I left my interview feeling collected and confident I'd attempted to answer my interview questions , as honestly, and explanatory as possible. I'm very nervous in these situations, because I don't want to seem unappreciative, yet, also, I feel it's important to be honest about what has failed, and what has worked. My unwillingness to work with my team, in certain regards, has been my biggest downfall, but that's who I am. I never learned to appreciate teamwork on a concrete level, and always have felt teamwork represent weakness for me, as an individual. At least working together on projects. Its the 'only-child' in me. A political venue probably would bring light to this weakness, yet also allow me to strengthen that skill set, which was one of the reasons I was very excited about the possibility.

I returned home from the Y and dinner, opened my email, saw the letter from the state office, and instantly had a bad feeling about it, which confirmed my fears that I wasn't chosen. I have to admit, I was instantly devastated, even though I was well aware my chances were slim. I really feel I need an opportunity to work in a office that is consistent about supporting constituents, and what an incredible way to give back to a community that helped me in so many ways. Would've been nice, but, I'll just have to work harder at making my accomplishments more well know. Definitely not a pleasant moment, when you receive a letter confirming that you were not offered a position you really wanted. It's all part of the game though, you win some, you lose some. Not receiving this internship was a loss for me, but going to the interview I learned a lot about myself, and how to handle myself in situations where i need to highlight my strengths and abilities. My favorite, telling you how awesome I am, and why you should like/hire me. Agh, it just seems like such a fallacy, and I can't get over it right now. Job hunting is so much fun...










Wednesday, August 29, 2012

Blueberry Cove 1/2 Marathon!

Last March I was invited by a family friend, to participate in a half-marathon on the Maine coast near my hometown. Never one to turn down a challenge or opportunity, I talked my Dad into doing it with me, as he did the Beach to Beacon 10k with me last year. I was really pleased to find company who understood my challenges, although, I do seem to overlook the fact that we can be so fundamentally different in terms of approaching the same challenge. I genuinely prefer not to consider the plethora of happenstances, which could go wrong. Life is a journey, which just seems too precious to waste any time considering the negative possibilities. Don't get me. Wrong, awareness of your limitations is key, however, dwelling on them is a mistake of indescribable magnitude, in my opinion anyways. My dad just feels a need to make sure I'm never in danger, thus making me feel like I'm always in the wrong, and as if I'm simply not capable of making my own determination of safe and comfortable. I can, and will push myself until I collapse. Because I do this, I know my limits. Very well. I've made, what is probably a mistake, in always training alone. I know how slow I am, and asking friends to walk with me, while I snap at them, if they try to direct me, just seems out of the question. Although, this said, the race director of the Maine Marathon, offered us slots in the Maine half marathon, in October. Of course, I jumped at the chance to run in a high profile Maine race. And, I was so relieved to learn that the roads would be closed during!

Blueberry Cove is actually a 4H camp for kids, though, it being near the end of summer, camp is over for the season. The event began Saturday evening with a delicious local Maine home style dinner in the mess hall, featuring, Clam chowdah, potato salad, and blueberry pie! Hands down, we have the best blueberries anywhere, in the state of Maine. They grow on the ground here, never realized they grew on bushes also, until I moved away, that is.
I wanted to this race largely because I'd (foolishly) assumed it would be fairly flat, being on the coast. Wrong! This was a very beautiful, however, very hilly course. For someone who does the majority of their training on a track,I was thoroughly spent after the 10th or 11th mile. However, as we neared mile 8 some extremely unusual noises began filling air behind us. My honest description of what I heard would be farm animals that had messed with opiates somehow. My first thought was that I must be delirious, although my dad heard them as well. We paled another hill and the sounds disappeared. I forgot about the noises, and tried to clear my head, and find a decent mindset to finish the race. I spent the majority of those 6 hours arguing, defending myself, and explains deficits which aren't all that obvious to my Dad as our 6 hour war over where, exactly I should be on the road progressed. My father has genuinely been with me every step of the way, and I am so thankful for all of the support he provides, but, if anyone can provoke the absolute ugliest reflection of anger and defensiveness from me, he can. He seems to be someone who understands the responsibilities, of being in authority, as that is what his role as captain of various ships in different cavities has called on him for. As a little kid, I was afraid of him, because I rarely saw him, and when I did, it was a different environment than I was used to. Therefore, scary. Now, it's my belief, that a disability (in general) forces you to learn to be on fairs all the time, because I live in an environment where CLOSE-friends are few, and far between, I feel like I've developed a defensive edge, which isn't always the easiest to drop. Nor, is a particularly attractive asset in new situations. Just have to keep pushing forward, and remember to recognize the amazing help that I have, and have had. I am just so pleased to have these opportunities to continue to push myself, and show others what's possible.

The pictures show my dad, myself, Brianna, Chelsea, and Abe. My Dad was my support person, and did the whole race with me. Val, Abe, Bri, and Chelsea popped in at different times to boost morale, so amazing! It was so much fun to a race with such a hometown feel! The other photo is Blueberry Cove at sunset. A heartfelt thank you to the many incredible who helped make this race possible for myself, as well as the other runners!

Saturday, August 25, 2012

Birds of a feather

Ever think you put too much on your plate? This is my double-edged sword, in that I take on too many commitments, and lead myself into failure because I can't see there isn't enough time in the day/week/month.

You can ask me to do something, and if I'm able, I'll say yes. This gets me into trouble with my rehab team all the time. For example, my job developer, who is one the biggest assets to my team, incredible drive, and follows through (OMG), which is an example I need, at least in terms of follow through. I be always been motivated to follow through on things I'm passionate about. Though, oddly, I'm not passionate about participating in the menial, pain in the ass, details in rehab. life I stink at. No one accepts pointed criticism gracefully, at least no one I know, myself included. I've come a long way, in the sense that I've learned to accept constructive criticism as a tool for potential improvement, not as a critical allegation towards my lifestyle. If I believe I'm being judged, in this situation, I generally withdraw my effort. This is not effective for me, or my team, do the real challenge for me is learning to accept assistance, in any regard. This isn't just a brain-injury manifestation, but rather, a standing part of my psyche. What I've been unable to realize, up until recently, is how these actions affect others. The intent isn't to focus on others perceptions, accolades, or criticism, but to consider these concepts in regards to making better choices. Yikes.

Tuesday, August 21, 2012

Wings of change

My day started off as usual for a Tuesday, I did my normal morning stuff, and then the government funded transportation service I use came. I felt extremely fortunate when I saw that that I had a driver, whom I actually like, and respect. He and his wife are from Bosnia, both hard working, honest, kind hearted souls. It's just nice when the first person I see, after leaving the house, is someone I already know, and think well of, as I have had some frustrating experiences with some others with this service. The ride brought me to the psychology office my program mandates I attend, or so I thought. I spent last week complaining about my experiences, and learned I had options. Yes! Yesterday, I composed an email denoting my difficulties/ distaste with this individuals methods, sent it, and today followed up on that message in person. Not an easy thing to psyche yourself up to do, I will say being that it's unprofessional not to follow up, when you've already made the commitment, I felt like I needed to physically speak my peace.
Arriving, and waiting for someone to arrive to open the building, I was quite nervous, as I didn't want to display animosity, or become emotional, period. Not always the easiest trick in the book, but once I was inside, I handled myself better than expected, as did the therapist. Such a relief, I felt like an enormous weight had been lifted from me, by leaving that office forever!
I was also extremely fortunate to have enlisted the assistance of my step-dad, Marty, who has always been one, of many supportive resources for me. It was such a relief stepping out of the office to someone I know is willing to take my thoughts and feelings about a situation into consideration, before bombarding me with their judgements and connotations. He was very supportive, and happy for me, which was such a relief upon walking away from a situation you've dealt with for so long, but never actually thought you benefitted from.

I get that expressing yourself is an important part of everyone's life. That's one of my key motivating factors for writing. But, for me, sitting in a room with someone whose been recommended for your case, and being expected to act as if I'm an open book, is not within my psychological abilities. Therefore, or for many reasons I'm finished expecting results, or even a conversation where I learn,!or grow. Such a relief to have made, what I feel is a. Plosive change to my support team!

Friday, August 17, 2012

Where the rubber meets the road...

Today, (or this evening rather) was a fantastic distraction from angst and confusion ridden caveats of my day to day life. This past Tuesday I had an infuriating 'therapy' session. This is a man whom I've never seen eye to eye with, but, in the interest of dodging proper topics, with actual substance, I've admittedly not been particularly open, preferring to placate my way through the conversation topics. Discussing personal issues face to face with most people has never been a skilled area of mine. It's not because I don't care, but more because my head thinks of multiple responses, which can be quite rude, depending on the situation. In the interest of not being a jerk, I'll keep my moth shut. Though, in the great ole US of A, if it's government funded systems have taught me anything in the last four years of robbing me of whatever self-respect I owned, it's that I don't fit in this idiotically designed system. I really do think our health care system is designed by well intentioned folks. The world is just so big, and variable now, that in trying to create system that fits EVERY-one, we've actually created a confusing black-hole. We live under a system that was designed for a uniform environment. The last time I checked, this country has never embodied uniformity. Certain groups try to, until other groups wear them down. Thesedays I'm pretty sure the message is to accept everyone for our differences. Doesn't always come across that way, but I'll just say its all part of our personal evolution.

In terms of my personal evolution, the more aware I become of my surroundings, the more difficult I find it to press on each day. What other people thought simply didn't affect me, which is probably why it's been so easy for me to march to my own drum this far. Why the change now? I know it's because my brain is reforming connections. However, this is a pretty frustrating time for me to be realizing the magnitude of my insecurities. Not cool. I can put them away, but now, they come back out and BITE. Extremely inconvenient timing as I'm just getting back into paid employment, and have to start at the bottom all over again.In theory, it's not a bad job, because I get paid to do something I have to do anyways, ride the bus. At first, I thought this would be a great little way to earn a few dollars. However, the moment I realized this meant I needed to be vigilant of my surroundings aboard the bus, I began to abhor the position, and the bus altogether. Apparently, I'm not the all-accepting type I thought I was, but to be stuck in an enclosed space with the conversations I listen to, hurts my soul. I just can't understand why there is such a cleft in our society, but it's also hard because I no longer belong to a side. And this environment really made me aware of that, therefore, I hate it. I literally get home, curl up, and sob, until I can collect myself and workout. Is this job worth the mental anguish it seems to illicit for me? Nope, but that's my opinion, which is, apparently disregarded. Yep, life is awesome right now, I can't wait to go home. At least I don't feel like scum of the Earth there.

This job probably wouldn't bother me half as much, if I had anything intellectual to hang on to, but, I don't, and according to my rehab. people it's my ticket to a job I want, because it forces me to work on my weak areas, like self-control, and time management. I know that's true, but it surely doesn't help me get through it anymore easily...

Tuesday, August 14, 2012

Breaking bad habits...

I'm not certain I have the strength to break one of mine, but, I've always thought that recognizing your problem is the first step. Although, I thought that's what I was doing today, when going over last weeks ruckus, I'd caused in my 'team' meeting. Apparently, the way I sstate my reasons for my problems, it ends conversations. I've recently started to become more aware of this annoying/fearsome trait I've been developing. I find it quite unpleant/awkward when I find myself talking to someone who does this. It struck me as passive/aggressive, and whiny. That's no fun. I've recognized this, in myself recently. Mostly, when I'm being questioned or, even attacked. I feel like I've come down with the small-minded excuse syndrome, that has turned me into a social leper. Or will, if it hasn't happened already. I've recognized myself doing, what i think is explaining my problem,and the conversation immediately dies, and I don't know why, in the moment. Knowing that I come across as a negative person from time to time, is a horrendous realization, for me, anyways. I talk to other people, who also do this, and I realize it's a conversation ender. It's not an intentional choice, but , nonetheless it occurs. This kind of statement just leaves no room for argument, or assistance. I despise it when someone does that to me, so I want to be able to recognize when I'm about to do it to someone else. I don't even know how this happened, but yuck! Yep, it's a bad day, when you realize you are your own worst enemy, and there I go again..

Realizing who I am today, has never been the easiest trick in the book for me, I'd prefer to live life oblivious, and un-assuming. I just realized those are cards I no longer hold, and probably never will again. This whole re-learning who I, and others are, period, in my 27 years, makes me feel very juvenile. It's not like I'm expecting to ever figure it out completely, but. I'd at least like to be comfortable with who I am. Yet, the first step is to ditch the whiny explanations, and figure out what I can do, instead of why I can't do something. Yep, no problem, that's an easy one, right?

Monday, August 13, 2012

Land of the?

In this life, right now, I understand that I need to work with what I'm given, as they're the only cards I have left to play, where I'm able to foresee any kind of outcome. Although, at this point, I feel as though I'm losing hope. I no longer feel like I can get back on my feet, with the tools I'm given. In this environment, the system doesn't really allow for that, nor doesn't sustain any sense of personal accomplishment. All I need to do, is correspond and manage the thoughts of 5 people to make one decision. Once in a great while, we pull off something, that really improves my life. Then, we get touted as a shining example. But really, most of the time I feel like I have 5 people helping me tread water. At some point everyday, I just want to tell them to pull the rug out from under my feet, and be gone. Then, on the other hand, I've developed connections with some of these individuals, and I have to realize that my success is in their hands right now. Quite frankly, I sucks at letting other people hold the reins.
I am interested in making use of the government programs which behoove my interests. But, when someone tosses 16 different options into a basket, and expects me (or anyone) to make a decision, I can really only hold on to 2 different options at a time. So I'm likely to choose the option with the most detailed discussion, or the last one. If these programs want you to be independent, then they need to do a more comprehensive job giving people the tools to get there. Every time I turn around, there's a different shiny and new option. At this point, as appealing as the advertisement may be, it's really just enabling me to sign on for more time living off of government funds. Can you blame me, if one of these days I immigrate to a new country ? I have to say, we have great intentions, but we've diversified our options so greatly were no longer capable of making decisions. We are so well intentioned here, but, each group has different interests to pursue. I now fully understand why' The Great American Melting Pot' will always be an idealistic dream, we can always go after, but never actually encapsulate. Helping everyone is a beautiful goal, but, it's just not that simple, as we all have different interests and ideals. I love living in a diverse country, but I do not love living in an economically diverse country. It means that 95 percent of the US population feels as though life is unfair, because the other 5 percent is so ridiculously wealthy they can control whatever strikes their fancy. So much for living in the land of the free.
Part of acceptance in this country is that we need to realize we all, can never fit in the same neat, little box. I appreciate speaking up for myself, just like the next person, but chances are we'll each have enormously differing views regarding the state of the economy, social issues, as well as political leaders. Does this mean either one of us should be more correct than the other? Nope. Of course, human nature prefers that you fight about it, and the victor prevails. It's like, why do people listen to Mitt Romney, oh maybe, because he's an active media figure who made a lot of money in big business, and people think, 'well, if we have leader like him, maybe we'll come into good fortune to help fix problems, or just enjoy the finer bushings in life, like I know? I wish life was that simple. I'm not even going to pretend I know what other party thinks in any situation, because, if I've learned anything in the past 5 years. It's to have no expectations. I, of course have expectations of myself, but I was trained a few years back, that no one (in the state program) actually expects anything of me. Its not designed for People to succeed with, but, for them to survive with. I know better, because I lived in the real world, and it's not as scary as I'm made to believe it is. Life is full of hard knocks for everyone. It doesn't matter who you you get painted as, we're all going to fall at some point, and then, hopefully, get back up, and try a new way. At least that's what I need to do...

Sunday, August 12, 2012

Surprise visit!!

Yesterday, while up to no good, looking for jobs, face booking, and cleaning, the phone rang, and I was surprised to see a friend from home was calling. Eager to catch up, I answered, and got the "Guess where I am?" response. I understand that typically when someone does that it usually means they're nearby. And, they were!

I knew she couldn't understand me very well, but we made a plan to meet at 9, when I'd wanted to go to yoga. But, close friends come so rarely, I had to see them. Apparently they'd been to a wedding, on the camppus of Matt's friends college, St. Micheals. I guess if you meet in college that's a great to the place to tie the knot, as it probably has the same amount of meaning. Though, it still seemed like an odd wedding venue.
They stopped by at 9, so we could go to breakfast. I thought it'd be fun to go to the Skinny Pancake, so we could appreciate the lake. I didn't realize they were off to Oak Ledge Park after. Basically, they ended up backtracking.
As fast as they appeared they were gone, and I found myself taking my standard Sunday stroll around the Winnooski Farmers Market. I found myself annoyed with the woman at the money table, as she couldn't figure out how to get funds from my food stamp card. Not a big deal, but I explained the differences, and which side was valid. She seemed to understand what I told her, but kept repeating the same mistake, which left some question. I only had $5, which doesn't get you very far, although I did surprisingly well, enjoying a smoothie, getting a chocolate croissant from the baker, cucumbers and zucchini from a farm I didn't recognize, and carrots from Roxanne. Last year, I bought a sunflower from her almost every week. She sells such a variety of good, but I always just wanted a sunflower. Weird, probably, but I really appreciate how the brilliant yellow brightened up my living space a bit. Also, whenever I talk with her, she is really honest if she doesn't understand something, which I really appreciate.
I walked back to my building, and made myself was and cut the veggies while I was still thinking about it. If I don't the just rot in my fridge I've learned.
After making a giant mess of the kitchen, I took the jogger out for an evening jaunt. The difference in how people respond to seeing me with the jogger is huge from last year. Almost everyone I pass initiates a hello, as they pass. Last year, it made my day, if one person did that.